External Links

A

Ability OnLine

Acoustic Neuroma Association of Canada

American Cleft Palate Association

American Lung Association

Anomalie Vasculaire

Apert International

Apert Support Group & Information Network (New Zealand)

B

Bacel Cell Carcinoma Nevus Syndrome (also known as Gorlin Syndrome)

BC Cancer Agency

Belgium Association of Congenital Defects

Bells Palsy Association

Birth Defects Research for Children

Burns Support Groups Database

Birthmarks

C

Canada Safety Council

Canadian Alopecia Areata Foundation

Canadian Association for Community Care

Canadian Association for Young Children

Canadian Burn Foundation

Canadian Cancer Society

Canadian Society of Ectodermal Dysplasia

Changing Faces

Children’s Craniofacial Association

Cleft Palate Foundation

Cleft Lip and Palate Association of Ireland

Cleft Lip and Palate Foundation of UK

CORD – Canadian Organization for Rare Disorders

The Cord Blood Center

Craniosynostosis And Positional Plagiocephaly Support

 Craniofacial Foundation of Arizona

D

DEBRA – (Dystropic Epidermolysis Bullosa Research Association of America)

Disability Dreams Group

Disability Resources

E

Ear Community

F

FACES

Family Village

Foundation for Nager Miller Syndrome

Friend’s Health

Friendly Faces

G

Genetic Alliance

Gorlin Syndrome

Goldenhar Syndrome

H

Headlines Craniofacial Support

Hemangioma Treatment Foundation

Higher Education Resource for People with Disabilities

I

J

K

Kinderstart

Kabuki Syndrome

Kids Health

Klippel Trenaunay Syndrome

L

Langer-Giedion Syndrome
Learning Disabilities Association of Canada

Let’s Face it USA

Let’s Face it UK

Little Baby Face Foundation

Lymphovenous Canada

M

Making Faces

Many Faces of Moebius Syndrome

Moebius Syndrome Foundation

Moebius Foundation Italia

MUMS National Parent to Parent Network

N

National Neurofibromatosis

Nevus Outreach

National Organization of Vascular Anomalies
(Includes hemangioma, port wine)

National Vitiligo Foundation

NORD (National Organization for Rare Disorders)

O

Ontario Coalition for Better Child Care

Operation Smile

Oral Cancer Support

P

Parenthood

Researchers Interested In Smith Magenis Syndrome

Pierre Robin Network

Pierre Robin Support UK

Syndrome de Pierre Robin (French site)

Phoenix Society

Q

Quit Smoking Community

R

Romberg’s Connection

S

Safe Kids Canada

Scleroderma Society of Canada

Spina Bifida & Hydrocephalus Association of Ontario

Stickler Involved People

Sturge Weber Foundation

Sturge-Weber Foundation Canada

T

Today’s Parent

TOMA Foundation for Burned Children

Transforming Faces Worldwide

Treacher Collins Connection

Treacher Collins Family Support Group

U

V

Vascular Birthmark Foundation
(includes Hemangioma, port wine, venous malformations)

Vascular Birthmark Foundation- Europe

Velo-Cardio-Facial Syndrome Education Society

W

Wide Smiles

World Burn Foundation

X

Z


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