September 26 2013

Hello I’m Samantha Seadon and I’d like to tell you a bit about myself. I’m 13 years old, and I was born with Neurofibromatosis a facial difference that’s been passed down in my family on my mom’s side. Oh and I am THE cover girl for the AboutFace magazine.

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September 26 2013

I’ve had around eight surgeries on my face, all around my left eye. Most have been fairly
short but three years ago, one lasted 12 hours and I spent about two weeks
in the hospital. My amazing doctors have been trying to thin my eye-lid, so I can keep it open and they
also had to remove tumours around my eye and brain. That big surgery is when they took a handful out, but they can’t remove them all, because some are close to my brain. They also took bone from my hip, and put it behind my eye. How clever is that! I’ve had many MRIs and will have them for the rest
of my life, and I’m pretty sure I’ll have a few more surgeries as well.

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September 26 2013

People stare at me, no matter where I go and some will ask, “What happened to your eye.” I don’t mind, I look different to them. I just tell them I was born that way. Some people do not know
what to say. If you think about it, we all look different, like hair colour skin, how tall or short we are.

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September 26 2013

The first time I heard about Camp Trailblazers was when I was introduced to Doctor Ross and met nurses Kathy and Cynthia. Kathy told me about the camp in Manitoba. I’ve been to three camps now and my dad has driven for 12 hours to get me there. We do camp stuff. We go swimming in the lake,
horseback riding, play tag, go rock climbing and I like archery. I even went to camp when I just had an op and had to stay on a liquid diet. There’s nothing like going camping with friends and having hotdogs done in the blender. It was good. Most of all I like meeting other
kids, like my friend Jessica. I’ve made some great friends who I still talk to online. That’s why Trailblazers is really
important to me. I get to meet other people with facial differences, and knowing that we are not the only ones makes all the difference.

I hope they get the Family camp going, I know my brother who is 11 years
old, would love it. And that way, he will not be left out.

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September 26 2013

This was the first summer I had off from seeing doctors. A break for me and my
parents, who took my brother and I to Mexico. It was a lot of fun, for my
parents as well who always drive me 12 hours, a couple times a year for my checkups. And my mom always stays with me when I have to spend time in the hospital after my
surgery.



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