Stories from Our Community
Alec
" Hi, I’m Alec and I’m eight years old. People tell me that I am smart for my age. It could be because I have Goldenhar Syndrome and I’ve spent a lot more time learning... "
Stories from Our Community
Ella & Anah
" As identical twins, we definitely have a lot in common. We are both very outgoing, intelligent, and hilarious. We love reading, amusement parks, dancing, and being outdoors. We both recently got our driver’s licences,... "
Stories from Our Community
Nadya
" I was born with cyclic vomiting syndrome and a segmental hemangioma on the left side of my face that extends into my airway all the way down to my sternum. I had a tracheostomy... "
Stories from Our Community
Brayden
" Hi, I’m Brayden and I’m 13 years old. I have a genetic form of cleft lip and palate called van der Woude syndrome. Each person with a cleft lip and palate has a different... "
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