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Beyond My Face

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Alliya and Avery

Hi, we are Alliya and Avery and we are almost 10 years old. Our first language is French, but we are good at speaking English too! We were born with a condition called Hallermann-Streiff...

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Brayden

Hi, I’m Brayden and I’m 13 years old. I have a genetic form of cleft lip and palate called van der Woude syndrome. Each person with a cleft lip and palate has a different...

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Zachary

Hi, I’m Zachary and I’m 14. I was born with Treacher Collins Syndrome (TCS). Everyone with TCS is affected differently. In my case, I have a tracheostomy to help me breathe and I wear...

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Alec

Hi, I’m Alec and I’m eight years old. People tell me that I am smart for my age. It could be because I have Goldenhar Syndrome and I’ve spent a lot more time learning...

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Abigail

Hi, I’m Abigail and I am 11 years old. I have lots of interests, but my favorite thing is to go camping with my family. We have camped all over the region and love...

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Claire

Hi, I’m Claire and I’m in grade 9. I was excited to be part of the Camp Trailblazers video. Camp has made a big difference in my life. It’s a place where everyone has...

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Christine

As a recently certified teacher, I’m excited about my new career. For me, there is no better feeling than watching a person gain confidence by helping him or her understand and master a difficult...

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Parker

Hi, I’m Parker and I have Goldenhar Syndrome. I have some big health challenges along with my facial difference – I was born with tricuspid atresia, a serious heart condition. On top of my...

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Trixie

I used to hide under my hair. I took every opportunity I could to not be seen. Living with Goldenhar Syndrome, I struggled with how I saw myself and how others saw me. In...

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Jill

I read about the call-out to participate in the Beyond My Face awareness video through social media, and I jumped at the opportunity. I wanted to take part in the video because having people...

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