Community Stories

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Living with Treacher Collins Syndrome has presented me with many challenges. However, I have also received many opportunities and gifts that might not have come my way without my diagnosis. That’s why I feel...

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I don’t want to say my life has been a struggle but I’ve definitely grown up seeing the world from outside of the “norm.” I was born with Sturge-Weber Syndrome, with a large port-wine...

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Below, the 2018 AboutFace Anna Pileggi Post-Secondary Scholarship winner, Camryn, provides an update on her first year at university… I’ve learned so much this year, far beyond the scope of what I had expected...

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We are so much more than how we appear. Society needs to change how it sees people with differences. I promise you, there is much more that what meets the eye. We, as humans,...

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Duncan was born with a face stained a deep dark purple. Just a regular newborn baby face, just a bruise. Or so we thought. When they called in the paediatrician shortly after he was...

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We are drawn to faces. We unlock our phones, identify friends and greet people with them. We face people, face adversity, face forward, face backwards and turn face. We read faces, type faces, draw...

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A smile – a universal welcome that triggers not only dopamine, endorphins, and serotonin spikes in your brain, but is a feel good communication that says “Hi” or “I like that.”  But what if those...

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I was born with Crouzon Syndrome.  Throughout my entire life, I have been treated differently because of the way I look. People think that because I look different, I am different from everyone else, but...

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Michael was born with a deformity in his right cheek, nose and gums. When he was 7 years old, he began bleeding profusely from his nose and mouth and was rushed to the Hospital...

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