What We Do

What we do? You know, that’s actually hard to put into words. Not because it’s complicated, but because what we do is so varied. Just like there are many facial differences, there are many ways to make a difference. In this section, you’ll discover some of the ways AboutFace is helping those affected. The only benchmark? We think they’re all inspiring and life-changing experiences.

Event full

At AboutFace, we provide a full and varied program of events.


Leave it all behind

We understand the need for escapism, a change of scenery or the opportunity to expand your horizons. Every year, AboutFace holds a variety of programs and escapes, from our perennially popular Camp Trailblazers for 10 to 18 year olds to our Adult Retreat at Pow Wow Point Lodge. Plus, we keep adding to our range of life skills and leadership courses, designed to keep you on a journey of discovery and self-improvement.



At AboutFace, we understand that one of the most daunting tasks facing adults and parents of children with facial differences is finding the necessary resources to secure the care and treatment they need. In Canada, we are very fortunate to have most of the medical expenses associated with congenital and acquired differences covered through the Provincial Health Plans and other Ministries of Health. However, this is not the case for dental care and other treatments. In fact, there is a vast inequality in treatment options, access and funding support province by province, making the task more complicated.

Access To Care

A Step in the Right Direction.

In 2010, AboutFace took part in an environmental scan of Canadian Cleft Lip/Palate Dental Bursary Programs, conducted for the Office of the Chief Dental Officer by Dr. Constantine Batsos (August, 2010). This report clearly highlights the discrepancies in the provincial programs, making access to dental care for this unique population unpredictable and inconsistent. The report in full is available here: The Cleft Lip and Palate Environmental Scan 2010.

AboutFace is working to increase and improve access to care in Canada for individuals with facial differences. We are working with partners and other associations to change and improve this disparity. Improving access to information is our starting point. In this section, you will find a listing of all the craniofacial clinics, information on the funding bursaries and dental programs offered in each province, a listing of all provincial health ministers, as well as detailed resources pages dedicated to explaining the various syndromes and conditions. As we continue developing this section, we will post other funding sources and ways to help you secure support for dental and other treatment as well as other ancillary expenses such as travel, etc.

Access to Care is a new feature that will aim to consolidate information in one central location for ease of use and reference. Therefore, this section will be updated on a regular basis to ensure that recent information is always available. If you have information that would be helpful to others in regards to securing funding or other special treatment options, please send it to AboutFace at emily@aboutface.ca or call us at 1-800-665-3223 x21.

All further inquiries or requests for information can be sent to: info@aboutface.ca

You can also connect with AboutFace and AboutFace constituents through:

Healthcare Contacts


Proudly Supported by:


AboutFace has developed specific support services to Empower, Encourage and Educate members as they embrace living with a facial difference. Support means different things to different people. From sharing personal experiences to finding resources online, all this contributes to the feeling that you’re not alone.

Support Services

  • Toll Free Hotline: For specialized information 1-800-665-FACE (3223) ext. 21
  • Community Activities

For information on AboutFace Activities & Awareness in your community, please contact:
416-597-2229 x21
1-800-665-3223 x21

Workshop Conference Calls

AboutFace holds 2 monthly workshop calls; one for Adults with a Facial Difference, and one for Parents of a Child with a Facial Difference . The purposes of these calls are to:

  • Provide an opportunity to connect with other adults who can relate to your experiences and feelings
  • Provide useful information, strategies and ideas
  • Provide a safe and trusting place to share and learn
  • Provide an opportunity to connect with others who can relate to your experiences
  • Share life experiences

Next Adult Workshop Date (EST)
Click here to check the events page for the upcoming call times

Next Parent Workshop Date (EST) — temporarily suspended due to staffing changes.
Click here to check the events page for the upcoming call times

Please let us know in advance:

  1. If you will be joining the call
  2. Your name
  3. Your medical condition
  4. You can reach AboutFace at 1-800-665-3223 or by email at amanda@aboutface.ca

Peer-to-Peer Networking: Connecting with Others


  • A grounding experience that validates concerns and feelings
  • An empowering strength to create confidence and self acceptance
  • An outlet to reduce anxiety, fear and loneliness
  • An opportunity to open doors to information and community access
  • A “buddy” to have honest and open discussions
  • A chance to share and relate medical information and experiences

We connect AboutFace members from across Canada and internationally through our Networking Programs. To register for Peer-to-Peer Networking, please complete the general registration form and check off “Peer-to-Peer Networking”.

Educational Support

Jessie’s Blessing is a picture book and interactive CD-Rom resource created for parents and educators of young children aged 3-7. Children are introduced to themes of uniqueness, acceptance, and understanding through the adventures of two little girls, a mother hen, and a special family of ducklings.  Click here to learn more.

Facing Differences is an interactive educational resource (in-class video and program guide) for children ages 8–12. The independent format provides teacher accessibility and flexibility to direct learning on diversity issues within their classroom. Click here to learn more!

Photo Galleries


We believe passionately in what we do and for us it’s always a privilege to be able to share our expertise and knowledge with you.

Our Speakers

After many years of listening to people with facial differences, their families and professionals, we realized there was a need for a dedicated and reliable source of information. Not just here online but out there in the real world too. So we set out to create a series of presentations and seminars designed to share new advances, thinking and insight into all aspects of living with a facial difference. They all have one very simple goal in mind, to leave you feeling even more ready, willing and able to make a difference and in the best way you know how.

What’s a Facial Difference
The Effective Professional
The Beauty Within: The Importance and Value of Self Esteem
Social and Psychological Needs of Parents of Children with Facial Differences
Psychosocial Benefits of Experiential Programs for Individuals with Cleft and Craniofacial Conditions
Making School Transitions for Children with Facial Differences More Effective and Pleasant
Building Bridges: Enhancing the Patient-Professional Interaction Across Differences
Boosting Your Client’s Self Esteem


AboutFace produces a variety of booklets, brochures, pamphlets, resource sheets for people with facial differences and the community at large. These are created to address the needs of all our members – families, children, adults, health care professionals and educators.

Resources & Publications

We offer AboutFace members a complimentary copy of our print resources and encourage health care providers to order a supply to support and educate their clients.
To order any of our resources, please email info@aboutface.ca.



Facing it Together is a workbook and DVD to provide support, insight and effective strategies to deal with some of the major issues that you will face during the first few years of your child’s life. Facing it Together is free for Canadian parents of children under the age of 5 with a facial difference. Continue reading



Jessie’s Blessing is a picture storybook and interactive CD for kids ages 3-7. Continue reading



Making Faces: Logan’s Cleft Lip and Palate Story is a picture story book that documents the cleft treatment process from birth to young adulthood through the personal journey of Logan Bristow. The story touches on many of the issues families face when their child is born with a cleft. Continue reading



Facing Differences is an interactive educational resource (in-class video and program guide) for children
 ages 8-12. The independent format provides teacher accessibility and flexibility to direct learning on diversity issues within their classroom. Continue reading



Another Face introduces the reader to five young Swedish people who were born with facial disfigurements. They share their thoughts and experiences in a series of insightful profiles by journalist and author Anna … Continue reading


Talking About Body Image, Identity, Disability and Difference: A Facilitator’s Manual is designed for professionals who want to implement workshops to help explore, develop and strengthen the social skills of individuals with facial differences … Continue reading



You & Your Baby: Newborns with Cleft Lip & Palate is presented by The Janeway Cleft Lip, Palate and Craniofacial Team at Eastern Health and is a resource binder for health care professionals and … Continue reading


Screen Shot 2014-11-25 at 7.15.09 PM

Le p’tit bonheur de Jessie


AboutFace Syndrome Booklets


Acquiring a Facial Difference: Skin Cancer helps patients understand the physical and mental health challenges of acquiring a facial difference and provides information on types of facial cancer, treatment options, rehabilitation and options for support. Continue reading



Apert, Crouzon and other Craniosynostosis Syndromes provides information on these craniosynostosis syndromes, details treatment phases, procedures and key psychosocial considerations for parents. Continue reading



Building Bridges across Difference and Disability: A Resource Guide For Health Care Providers is for professionals who have direct contact with people living with facial differences and disabilities. Continue reading



Face Values is a collection of personal stories providing insight into the feelings, attitudes and self image of women living with facial differences. Continue reading



Hemangiomas and Vascular Malformations includes an overview of these conditions for parents detailing treatment options, preparing kids for social interaction and an adult perspective. Continue reading



Microtia explains the condition, impact, treatment timing and options, offers support to parents and an adult perspective. Continue reading



Moebius Syndrome details the condition for parents including associated medical problems, social considerations and the personal reflections of an adult living with Moebius Syndrome. Continue reading


AboutFace Pamphlets

AF_Brochure_individuals_2016_002 cover only

The AboutFace General Pamphlet includes an overview of our programs and services and a membership registration form. Continue reading



My Baby Has A Facial Difference is a guide addressing common medical, social and emotional issues for new parents as they begin the journey of raising a child born with a facial difference. Continue reading



Mon Bébé a une Différence Faciale est un guide qui adresse les questions médical, social et affectif pour les nouveaux parents où ils commencent le voyage d’élever un enfant né avec une différence faciale. Continue reading



Coping with Teasing and Bullying provides strategies and practical solutions to help kids deal and respond to these situations. Continue reading



You, Your Child and the Craniofacial Team is a guide for parents to help understand and become effective participants in the “team approach” to medical treatment of craniofacial conditions. Continue reading



Vous, votre enfant et de l’équipe craniofaciale est un guide pour les parents pour aider à comprendre et à devenir des participants efficaces dans l’équipe médicale soins à un traitement médical des conditions craniofaciales. Continue reading


AboutFace Resource Sheets

AboutFace Suggested Reading List


The Church of 80% Sincerity – David Roche

This book follows author David Roche – a motivational speaker, through his journey dealing with his facial difference and gaining self-acceptance over the years. He shares his life experiences with humour, and encourages others … Continue reading

Order Now!


Wonder – R.J. Palacio

August Pullman was born with a facial deformity that, up until now, has prevented him from going to a mainstream school. Starting 5th grade at Beecher Prep, he wants nothing more than to be … Continue reading

Order Now!


An Autobiography of a Face – Lucy Grealy

At age nine, Lucy Grealy was diagnosed with a potentially terminal cancer. When she returned to school with a third of her jaw removed, she faced the cruel taunts of classmates. In this strikingly … Continue reading

Order Now!


Facing Up To It – Dawn Shaw

When Dawn has a fast-growing tumour removed shortly after birth, it not only reshapes the left half of her face, leaving it deconstructed and paralyzed; it reshapes her entire life. Her journey of self-discovery … Continue reading

Order Now!

cleft heart cover image with badge

Cleft Heart: Chasing Normal – Karl Schonborn

Karl Schonborn’s silver tongue is locked away for years by a birth defect that makes his speech unclear and his face asymmetrical. Bullies target him for this and even for being restricted from PE … Continue reading

Order Now!

the scar boys

The Scar Boys – Len Vlahos

A severely burned teenager. A guitar. Punk rock. The chords of a rock ‘n’ roll road trip in a coming-of-age novel that is a must-read story about finding your place in the world…even if you carry scars inside and out. Continue reading

Order Now!

no risk no reward

No Risk No Rewards: A Burn Survivor’s Journey from Near Death to Success

Kelly was only two years old when she had a tragic accident and suffered burns to 75% of her body. This story is all about her struggles from trying to find her beauty to finally accepting her beauty from within and becoming a successful business woman. This book is about Kelly Falardeau’s journey from near death to success. Continue reading →<

Order Now!


Facial Shift: Adjusting to an Altered Appearance

Your face, and your life, has been radically altered. Accident, military injury, medical condition…the result is the same. You are now having to confront the world with a “different” face, and understandably this has wrecked

Order Now

el deafo cover

El Deafo – Cece Bell

Going to school and making new friends can be tough. But going to school and making new friends while wearing a bulky hearing aid strapped to your chest? That requires superpowers! In this funny, poignant

Order Now


Since 1985, we have published an international newsletter to provide information on issues related to facial differences. It is designed to be informative, educational and inspirational for AboutFace members.

Our newsletter is written by and for individuals with facial differences. Every issue contains personal stories and addresses treatment issues, current resources and trends relevant to adults, kids and families living with facial differences. Therefore, we welcome and encourage contributions from AboutFace members. Send your personal story, topic ideas or resource recommendations to emily@aboutface.ca

We produce twelve eNewletter editions per year and two print versions for the health care community. If you would like to receive our eNewsletter, please register with AboutFace.


AboutFace Scholarship Program

AboutFace Scholarship Program

The AboutFace Scholarship Program was created to recognize the personal and academic achievements of AboutFace members embarking on post-secondary education. This national award celebrates the accomplishments of AboutFace youth with facial differences and the significant contribution they are making to our organization and their communities.

In 2017, in honour of her retirement, the AboutFace National Scholarship was renamed the Anna Pileggi Scholarship to honour her legacy as AboutFace's Executive Director of 21 years. With this fund, Anna's incredible impact and commitment to the facial difference community will be remembered for many years to come.

The scholarship will be open to all AboutFace members within Canada, who are in their final year of high school or CEGEP and will be attending a post-secondary institution in the 2017/18 school year. Two recipients will be selected annually who best exemplify the qualities of personal achievement and community spirit. We will be recognizing students who have demonstrated both a record of progressive academic success as well as involvement in AboutFace and their greater community. A grant of $2,000 will be awarded to each recipient.

Submission is closed for 2017-2018 school year. Check back in the new year to apply for 2018-2019. Congratulations to this year's recipients!

Meet 2017 Scholarship Winner Morgan

Meet 2017 Scholarship Winner Rebecca


A complete application consists of the following components:

1) The scholarship Application 2017, fully completed and signed.
2) A statement by you, of up to 500 words in length, describing how being involved with AboutFace and other community activities and organizations has impacted your life and shaped your future career ambitions. We want to know how you have helped to make a difference.
3)  A letter of reference written by a senior official to support your application. This is a representative from your high school (principal, guidance, counselor or teacher) or a community organization/group (other than AboutFace) with which you are involved.
4) A transcript of your high school or CEGEP academic record, complete to the end of the first term or semester of your final year.
5) A letter of acceptance from a certified post-secondary educational institution.

All applicants will be notified in writing by the end of June 2017 as to their status. Incomplete applications cannot be considered. Please retain copies of your application materials as originals will not be returned.

DEADLINE – May 31, 2017 *Application submissions will no longer be accepted.

All applications and supporting documents must be postmarked no later than May 31, 2017 to the address below. No late or incomplete submissions will be considered. Please do not send applications by fax or e-mail.

Scholarship Program
51 Wolseley Street
Toronto, ON     M5T 1A4

1-800-665-3223 x 21


Do you want to contribute to the future of other youth with facial differences?!? Click here to donate now!

Previous AboutFace Scholarship Winners:
2017 - Rebecca Brown & Morgan Capinding
2016 - Katie Atkinson & Jade Laird-Umanetz
2015 - Katarina Finnegan & Meeka Rowat
2014 – Michelle Harwood & Hayley Hasessian
2013 – Braidy McKay & Josh Grossgardt
2012 – Stuart Waddel & Ruaridh MacDonald
2011 – Greg Markham & Audrey Fehr
2010 – Amanda Lizon & Christine De La Cruz
2009 – Joshua McCaul
2008 – William Archer

AboutFace is pleased to announce that the AboutFace National Scholarship Program has been fully funded by SAP Canada Inc.  As a market and technology leader in business management software, SAP is committed to making a difference to helping the world run better and improving people’s lives. The National Scholarship Program is designed to encourage and empower youth to get involved in their community, pursue post-secondary education, and realize their goals and dreams. AboutFace is grateful to SAP for supporting our youth through this important program.

Theme by Simple Themes